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Congenital heart defect: a lifetime of care

About 1 in 100 newborn babies has a congenital heart defect. The impact of this on their lives is great. At the UMC Utrecht and WKZ, we are studying how to limit the impact: for now and in the future. We call this life-course care. See here what life-course care means and how research in this field contributes to the best possible quality of life.

What is life-care? Watch the videos

Our specialists explain it briefly.

Kors van der Ent: What is life-care?

Hans Breur: What do we do in the field of life care and research?

Elise van de Putte: What will life care bring to patients in the future?

Patient Tell

What is the impact of a congenital heart defect? Our patients tell their stories.

Ever since the 20-week ultrasound, it has been clear that Juul (2) has a congenital heart defect. What does that do to you as parents? And how is Juul doing now? Watch the video.

Juul has a congenital heart defect

Portrait of Wilma

Wilma (21) was born with a heart defect. She has been coming to UMC Utrecht and WKZ all her life. Read her story here.

Research

Maaike with a child

Children with a severe congenital heart defect sometimes have retarded motor development at a young age. How can we respond to this early on? And can we prevent this? Maaike Sprong, pediatric physiotherapist at the WKZ, talks about her research.

Is sports with a heart condition dangerous?

Medical physiologist Tim Takken about sports and exercise for children with a congenital heart defect

Portrait Tim Takken
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