Profile photo Everlien de Graaf

Everlien de Graaf

Assistant Professor

Biography

My research focusses on understanding the multidimensional needs of patients with incurable illness at home or in hospice, and their families and improvement proactive appropriate palliative care accordingly. From indepth exloration of needs and meaning, to the (dynamic)prediction of symptoms and concerns during the illness trajectory.

Patient, informal caregiver, healthcare professionals and student involvement is key in every project, from conception to dissemination.

Qualitative and quantitative methods necessary are necessary to ensure a deep understanding of the patient, their informal caregivers and healthcare professional experiences. Besides, providing evidence on the effectiveness of care improvement and implementation strategies necessary to bring change to practice, while dealing with the consequences of performing research studies in a vulnerable population, where dying is a sign of the right selection of participants.

Keywords: General Practice & Nursing Science, primary care, epidemiology, palliation, hospice, appropriate care, symptom management, advance care planning, interprofessional collaboration, implementation science, heart failure, cancer

Recent publications

Validating the socio-spiritual items of the Utrecht Symptom Diary-4 Dimensional Tom Lormans, Everlien de Graaf, Frederieke van der Baan, Carlo Leget, Saskia Teunissen
Palliative Medicine, 2025, vol. 39, p.622-634
"Are you listening?" Hinke E Hoffstädt, Mary-Joanne Verhoef, Aranka Akkermans, Jenny T van der Steen, Arianne Stoppelenburg, Sita de Vries, Everlien de Graaf, Saskia C C M Teunissen, Iris D Hartog, Yvette M van der Linden
PLoS ONE, 2024, vol. 19
Experience or perception Tom Lormans, Everlien de Graaf, Carlo Leget, Saskia Teunissen
Palliative Care and Social Practice, 2024, vol. 18
Comfortable Mouths in Terminal Phase of Life: A Feasibility Study for Managing Xerostomia in Hospice Patients Tamara van Schaik, Nina Stoks, Cathelijne Verboeket-Crul, Loek Wagenaar, Jaap Gootjes, Saskia Teunissen, Everlien de Graaf
Palliative Medicine, 2024, vol. 38, p.206-207
“Are You Listening?” Family Caregivers’ Experiences Expressed Online during the COVID-19-Pandemic H.E. Hoffstadt, Mary Verhoef, A Akkermans, J.T. van der Steen, A Stoppelenburg, Sita de Vries, Everlien de Graaf, Saskia Teunissen, I.D. Hartog, Y.M. van der Linden
Palliative Medicine, 2024, vol. 38, p.86-87
Exploring the Gender Specific Relationship between Dignity and Multidimensional Symptoms and Concerns in Hospice Patients Everlien de Graaf, P.M. Colijn, Nynke Thien, Carlo Leget, Saskia Teunissen
Palliative Medicine, 2024, vol. 38, p.236