Ghislaine van Thiel

Associate Professor

Contact

gthiel@umcutrecht.nl

Pure profile

Research groups

Bioethics & health humanities

Research aim

The Department of Bioethics & Health Humanities is an interdisciplinary research department. Our expertise spans fields such as bioethics, health law, history of medicine, narrative medicine, health research governance, and patient involvement.

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Recent publications

All publications

Addressing the Key Challenges of Decentralized Clinical Trials in Europe Carlos Murciano-Gamborino, Lina Pérez-Breva, Amos J de Jong, Martin Boeckhout, Ghislaine Jose Madeleine Wilhelmien van Thiel, Kate Huntley, Hamidou Traore, Helga Gardarsdottir, Jaime Fons-Martinez
Journal of Medical Internet Research, 2026, vol. 28

Implicit ethical choices in ultra-rare therapy development Mariia V Maksimova, Rosan L Lechner, Felicia V Y L Lee-Kong, Johannes J M van Delden, Ghislaine J M W van Thiel
BMC Medical Ethics, 2026, vol. 27

SWOT analysis of decentralised clinical trials from an ethical, legal, regulatory and operational perspective C Murciano-Gamborino, L Pérez-Breva, A J de Jong, Gjm van Thiel, Y Santa-Ana-Tellez, M Boeckhout, S J Siiskonen, T van Rijssel, H Gardarsdottir, J Fons-Martinez
BMC Medical Ethics, 2026, vol. 27

Towards responsible surveillance in preventive health data-AI research Sam H.A. Muller, Johannes J.M. van Delden, Ghislaine J.M.W. van Thiel, Hypermarker Consortium
PLOS digital health, 2025, vol. 4

Which Benefits Can Justify Risks in Research? Tessa I van Rijssel, Ghislaine J M W van Thiel, Helga Gardarsdottir, Johannes J M van Delden
The American Journal of Bioethics, 2025, vol. 25, p.W7-W10

Blueprint for clinical N-of-1 strategies with off-label precision treatments in monogenic epilepsies Victoria M Defelippe, Eva H Brilstra, Willem M Otte, Ghislaine J M W van Thiel, Helen J Cross, Finbar O'Callaghan, Valentina De Giorgis, Emilio Perucca, Kees P J Braun, Floor E Jansen
Orphanet Journal of Rare Diseases, 2025, vol. 20

External positions

Lid Raad van Toezicht - toezichthouder - Nederlandse Vereniging voor Cardiologie

Lid - Beoordelen medisch wetenschappelijk onderzoek - Centrale Commissie Mensgebonden onderzoek

Lid Raad van Toezicht - Toezichthouder - GGZ InGeest

Adviseur - Initiatieven tbv bevorderen kwaliteit - Prinses Maxima Centrum voor kinderoncologie

Bestuursvoorzitter - Leiden van het bestuur - Stichting Agnes van Leeuwenberch