Profile photo Joost Swart

Joost Swart

Associate Professor - medical

Strategic program(s):

Biography

Joost Swart is an Associate Professor in Clinical Paediatric Rheumatology.

He is a board certified Paediatrician Immunologist & Rheumatologist and Scientific Researcher Epidemiologist. 

He also works as the Coordinator of one of the 24 European Reference Networks (ERN) for rare immunological disorders: https://ern-rita.org/

He is a Member of the Scientific Advisory Council for the National Health Care Institute (Zorginstituut Nederland; ZIN)

After receiving his Medical Degree (cum laude/ with Honour) from the University of Groningen, he finished his training as a paediatrician at the VU Medical Center in Amsterdam. His fellowship paediatric rheumatology-immunology was completed in Utrecht. He worked as a paediatric rheumatologist for 3 years in both Reade and the VUmc in Amsterdam. In 2011 he came to work in the largest Dutch group of Pediatric Rheumatology / Immunology based in Utrecht where he finished his PhD thesis "Tailoring Treatment in JIA" in 2018. He graduated at the Utrecht University for a Master of Health Sciences grade in Epidemiology in 2025.

He is copromotor of 9 PhD students, 4 of which already have succesfully defended their theses. He also succesfully initiated more than 60 studentprojects and succesfully guided these students for their Bachelor and Master theses.

His research focuses on comparative effectiveness and safety of drugs, treatment-strategies and eHealth in juvenile idiopathic arthritis (JIA).  He is co-lead researcher of the international Pharmacovigilance database Pharmachild (over 9000 JIA-patients who have contributed their clinical data and thousands of blood and synovial samples) and is a.o. co-P.I. of the UCAN CAN-DU project https://www.ucancandu.com/  (>2,500 JIA patients with extensive data including health economy and thousands of biospecimens) and UCAN JUMP JUMP: de sprong naar genezing van jeugdreuma | ReumaNederland.

He is (co-)author on more than 120 scientific articles in peer-reviewed journals, several Chapters in Textbooks and several Guidelines and Recommendations. He is (co-)applicant on multiple successful large research grants (e.g. UCAN CAN-DU, UCAN-C, PAVE, SMART JIA, UCAN JUMP, UNIFIED).

He is council member of the Paediatric Rheumatology European Society, board member of PRESTAR (Trials and Registries of PRES), member of the Science Committee of the Dutch Pediatric Association, member of the Rare Disease National Mirror Group, member of the EULAR PAED Committee and Clinical Expert Member for C4Cs.

He is member of the Dutch Pediatric Association, Dutch Rheumatology Association, Paediatric Rheumatology European Society, and the Dutch Association against Quackery.

He educates students in both the CRU and Summa medical curricula in Utrecht. He trains interns, residents and fellows in paediatrics and rheumatology in UMC Utrecht. He is a certified instructor on the APLS-course from the Advance Life Support Group.

Recent publications

Changes in systemic medication in children and adolescents with juvenile idiopathic arthritis Merel Boer-de Boer, Sytze de Roock, Antoine C G Egberts, Arief Lalmohamed, Joost F Swart
Rheumatology (Oxford, England), 2026, vol. 65
Defining pain trajectories in juvenile arthritis and associated patient characteristics Maarten O Mensink, Sytze de Roock, Julia Drylewicz, Kevin Jenniskens, Nico Wulffraat, Joost F Swart, Niels Eijkelkamp
Arthritis research & therapy, 2026, vol. 28
Work productivity and activity impairment in patients under 18 with juvenile idiopathic arthritis (JIA) Deborah A Marshall, Rodrigo Dal Ben, Gillian R Currie, Rae S M Yeung, Sebastiaan J Vastert, Nico Wulffraat, Joost F Swart, Susanne Benseler,
Arthritis research & therapy, 2026, vol. 28
Adoption of new treatment options in non-systemic juvenile idiopathic arthritis (JIA) in clinical practice Hedda C Lamers, Erika Van Nieuwenhove, Sebastiaan J Vastert, Marc H A Jansen, Annet van Royen-Kerkhof, Joost F Swart, Sytze de Roock
Pediatric rheumatology online journal, 2025, vol. 23
Development and Qualitative Evaluation of a Decision Support Tool for Withdrawal of Biologic Therapy in Nonsystemic Juvenile Idiopathic Arthritis Janine A van Til, Michelle M A Kip, Robert Marinescu-Muster, Karin Groothuis-Oudshoorn, Gillian R Currie, Susanne M Benseler, Joost F Swart, Sebastiaan J Vastert, Nico Wulffraat, Rae S M Yeung, Deborah A Marshall, Maarten J IJzerman
MDM policy & practice, 2025, vol. 10, p.23814683251364199
Effect of Time to Start of Biologic Therapy on Treatment Response in Childhood Arthritis Jelleke B. de Jonge, Sytze de Roock, Dieneke Schonenberg-Meinema, J. Merlijn van den Berg, Deborah A. Marshall, Sebastiaan J. Vastert, Rae S.M. Yeung, Joost F. Swart, Susanne M. Benseler, Adam Huber, Bianca Lang, Chelsea DeCoste, Elizabeth Stringer, Suzanne Ramsey, Alan Rosenberg, Kate Neufeld, Mehul Jariwala, Tristan Kerr, Alexander Mosoiu, Alisa Rachlis, Amy Xu, Arthur Cheng, Brenleigh Jebb, Brian Feldman, Bruno Pereira, Deborah Levy, Dilan Dissanayake, Elizaveta Limenis, Evelyn Rozenblyum, Harper Cheng, Jennifer Ji Young Lee, Lynn Spiegel, Rayfel Schneider, Ronald Laxer, Ruud Verstegen, Shirley Tse, Trang Duong, Andrea Human, David Cabral, Herman Tam, Jaime Guzman, Kim Morishita, Annet van Royen-Kerkhof, Berent Prakken, Erika Van Nieuwenhove, Marc Jansen, Nico Wulffraat, Elizabeth Legger, Ellen Schatorje, Michelle Kip,
Arthritis & Rheumatology, 2025, vol. 78, p.743-751

Fellowships & Awards

2026  Pearl Award for the UCAN CAN-DU Project (ZonMw Parel)

ZonMw Parel voor preciezere diagnose én behandeling bij jeugdreum

2015  “The Addition of one or more Biologics to Methotrexate in Children with JIA increases the Incidence of                  Infections and Serious Adverse Events. The 5882 Pharmachild Cohort.” Selected as Top 6 of Clinical Science Abstracts chosen from 4323 Abstracts EULAR Congress Rome

2010  “Mesenchymal Stem Cell Therapy has significant Clinical and Histopathological Effect in Proteoglycan Induced Arthritis” Selected as Top 25 of Basic Science Abstracts chosen from 3,508 Abstracts EULAR Congress Rome

2009  Teaching Award for Excellence in Clinical Teaching, Dep. of Paediatrics, VUmc Amsterdam

2002  Resident Teaching Award for Excellence in Clinical Teaching, Dep. of Paediatrics, Deventer Hospitals, NL

External positions

lid van de Wetenschappelijke Adviesraad Commissie Geneesmiddelen - Advisering van de Raad van Bestuur van Zorginstituut Nederland over pakketbeheer en kwaliteit - Zorginstituut Nederland