Child Health has a special focus on the four areas of disease mentioned above. The work we do in these areas is united by three research approaches: cycle of life, Physical and Mental Health and Interdisciplinarity.
Prognosis of pediatric diseases have improved dramatically over the past few decades. For example, the life expectancy of children with cystic fibrosis has increased from about 10 years in the 1950s to almost 50 years in current times. The advancements in survival rates and success of combating acute complications have, in turn, changed care requirements of pediatric patients. New long-term complications of diseases are emerging. Research in chronically ill children demands parallel focus on long-term health for adults.
Physical restrictions in childhood can significantly impact psychosocial development and identity in adulthood. Pain and early discomfort can undermine a child’s basic trust, while separation from family and friends can hinder social skills. Missing school or sports might also affect their resilience during adolescence. Thus, focusing solely on a child’s physical health is insufficient.
Psychological issues in childhood can also adversely affect medical treatment outcomes for chronic diseases. For example, denying symptoms or poor treatment adherence can worsen these conditions. Therefore, we focus on understanding and addressing factors like pain and fatigue, both in basic and clinical research, to develop and evaluate effective interventions. Our goal is to empower children and their families to be prepared for their future.
Our Child Health Program has built a scientific framework that combines different areas of biomedical research involving groups of children with chronic diseases and their families. To improve outcomes for these children, our research needs a wide-ranging approach that includes basic medical research, clinical application, and insights from the humanities (like ethics) and social sciences. Patient and family involvement is crucial in all research stages.
